11 June, 2014 09:34

Cora was scheduled for MIBG last week in Madison, but it was cancelled due to a manufacturer strike in Quebec. Agghh, so now she is set to begin MIBG today at the U of M, wish us luck.

Sent via the Samsung Galaxy S™ III, an AT&T 4G LTE smartphone

17 May, 2014 09:58

Cora had scans this week. The cancer has progressed. She still has the large tumor in her left femur. Now she also has new tumor in her right leg, hips, shoulders, and a new mass in her abdomen. Her cancer has become resistant to chemo. She has a few treatments options left, the goal of treatment is to give her as much pain free time as possible. The next step will likely be MIBG therapy in Madison. MIBG is a special type of radiation that has about a 30-40% response rate. She will need to be isolated by herself in a lead lined room for up to 5 days. We appreciate all your prayers and support. For now we are living for today and she had been feeling really well. Laughing and running around like the little spitfire she is.

Happy 5th Birthday Cora!

Sent via the Samsung Galaxy S™ III, an AT&T 4G LTE smartphone


Cora has started a trial that combines chemo with an investigational anti-parasitic drug. She will be splitting time between Children’s Hospital of Minneapolis and Helen DeVos children’s hospital in Grand Rapids MI. In about two weeks we will begin to have an idea if this treatment is shrinking the cancer. Thanks for all your well wishes.

Terrible news

Yesterday we found out that Cora has relapsed. Not sure yet to what extent, but her doctors are not hopeful. The only treatment options now are clinical trails, which we are investigating and will be deciding soon where to continue treatment. She feels really good, except knee pain. SO SUCK IT CANCER, we are going to gymnastics class and preschool.

Full remission !

We want to thank God and everyone for your support and prayers. Today Cora was declared in full remission. Best Christmas present ever! Sent from my iPad


Cora and Ollie having fun
At Disney with the real
Princesses! Doing well.
Hi everyone!

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